We have been impressed with the way Rachel Papworth has led these projects. She has sought to engage us, as the client, at every stage in the process and produced well researched, documented and authoritative final reports. Rachel is a very effective and professional communicator.

The Sussex Learning Network

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Evaluation of NCSI Service User Involvement Model

Date: December 2009 - January 2011

Client: Macmillan Cancer Support

Papworth Research & Consultancy evaluated service user involvement within the NCSI (The National Cancer Survivorship Initiative), which aimed to improve services and support for people affected by cancer.

We trained people affected by cancer to work with us as Co-Researchers: planning the evaluation; developing research tools; and undertaking fieldwork.

The evaluation methodology involved focus groups and semi-structured interviews with the Chairs of the seven workstreams within the NCSI, other workstream members and service user representatives, collecting data relating to the following issues:

Positive and negative impact of user involvement on NCSI workstream activity;

Positive and negative impact of user involvement on service users;

Barriers and facilitators to effective engagement of service users.

Our report made recommendations for the future of the NCSI (identifying responsibility for implementing each recommendation).

Papworth Research & Consultancy Ltd : 92 Bonchurch Road, Brighton, East Sussex BN2 3PH
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